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Epilepsy- Comprehensive Pediatric Epilepsy Program (CPEP)

CPEP is a multi-disciplinary care model for the management of individuals with medically refractory epilepsy. Various aspects of care, including medical, psychosocial, nutritional management, appropriate neurodiagnostic investigations, and capability for presurgical diagnostic evaluation are a part of CPEP.

At McMaster Children's Hospital, CPEP has two clinical components:

Comprehensive Pediatric Epilepsy Clinic (CPEC)

Epilepsy Monitoring Unit (EMU)

Services Provided within CPEP:

Medical Management: An evidence based approach to the medical management of children and youth with epilepsy, who continue to have seizures despite being on more than one medication (also known as medically refractory epilepsy).

Pre-surgical Evaluation: If more than one drug fails to control seizures, it is possible that your child may benefit from epilepsy surgery. The first step in this process is to determine whether the seizures originate from one localized area of the brain. Using medical evaluation such as brain MRI's , prolonged Video EEG monitoring in the EMU, and neuropsychological testing in the comprehensive epilepsy clinic help determine whether further investigations are needed.

Standardized Psychosocial Evaluation: Epilepsy impacts the psychosocial well-being of children and their families. Standardized psychosocial evaluation is part of the assessment for patients with refractory epilepsy.

Liberalized Forms of Diet Therapy:Some children and youth with medically refractory epilepsy might benefit from specialized medical diet therapy to stop or reduce the number of seizures. Conventional restrictive diet plans and liberalized diet therapy are offered which are provided under medical supervision through a registered dietitian.

Members of the CPEP Interdisciplinary Team include:

Epilepsy Neurologists: A Neurologist is a doctor who specializes in the diagnosis and treatment of neurologic conditions affecting the brain, nervous system, or overall development in children. Epilepsy neurologists have additional clinical training in the diagnosis and management of children and youth with medically refractory epilepsy.

Dr. Rajesh RamachandranNair, MD, FRCPC (Neurology), Medical Director

Dr. Kevin Jones, MB ChB, FRCPC (Neurology)

Nurse Practitioner: A Nurse Practitioner with special knowledge and experience in dealing with epilepsy in children.

Social Worker: Social Workers help patients and their families cope with the practical and emotional concerns that accompany the diagnosis of epilepsy. Social workers play an important role in the epilepsy clinic and believe in building on the strengths of each patient and their family. The social worker works with the rest of the team to ensure that the patient and family reach their full potential. Standardized psychosocial assessment is done by the social worker.

Registered Dietitican: Registered Dietitian in the CPEP implements the specialized diet therapy plan for children and youth with epilepsy.

Neuropsychologist: A psychologist who specializes in assessing the effect that certain brain problems can have on behaviour, attention, thinking, learning, memory, language, and perception. Neuropsychological assessment is offered to children and youth as part of pre-surgical investigation or post-surgical assessment.

Psychometrist:  A psychometrist is responsible for the administration and scoring psychological and neuropsychological tests under the supervision of a clinical psychologist or clinical neuropsychologist.  The psychometrist may also be responsible for collecting demographic information from a patient.

EEG Technologist: A registered Electroencephalograph technologist who is responsible for the video EEG recording in the EMU.

Resources:

Niagara Region           

Epilepsy Niagara  

Niagara’s Children’s Center

Contact Niagara 

Hamilton Region           

Epilepsy Halton Peel Hamilton

Children’s Developmental Rehabilitation Program

Contact Hamilton

Brantford Region          

Epilepsy Halton Peel Hamilton  

Landown Children’s Center

Contact Brant

Haldimand Region        

Epilepsy Halton Peel Hamilton  

Reach 

Halton Region             

Epilepsy Halton Peel Hamilton  

Erin Oak Kids

Rock Reach Out Center for Kids

Waterloo Region          

Epilepsy Waterloo/Wellington

Kids Ability Centre for Child Development

Front Door

Wellington Region        

Epilepsy Waterloo/Wellington

Kids Ability Centre for Child Development

Trellis  

Hamilton Health Sciences • Hamilton, Ontario • 905.521.2100

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